How is knowledge about care produced? The ‘epistemological dimension’ of care is recognised in the concept of ‘responsiveness’ in which attention to the care-receiver’s experience informs the care process at the micro level. What counts as ‘knowledge’ about care in political processes is also highly significant yet a further dimension of exclusion from participation operates here. Most knowledge about care is produced without the inclusion of care-receivers and without regard to their lived experiences of care. This chapter explores this using empirical research that was co-produced with older people about lived experiences of care within the English social care system. Within the current neoliberal context, measurement-based knowledge is more highly valued and recognised. The lived experiences of care under neoliberalism directly challenge the assumptions underpinning the consumer choice rationale of the marketisation of care. The authors argue that building knowledge based on the lived experiences of care with those who have direct experience is necessary for ‘caring democracy’.
|Title of host publication||Care Ethics, Democratic Citizenship and the State|
|Editors||Lizzie Ward, Petr Urban|
|Number of pages||20|
|Publication status||Published - 9 Jul 2020|
|Name||International Political Theory|
Bibliographical noteThis chapter is licensed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license and indicate if changes were made.
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- School of Humanities and Social Science - Principal Research Fellow
- Centre for Arts and Wellbeing
- Care, Health and Emotional Wellbeing Research and Enterprise Group